Tag: Cancer

Multiple Myeloma – SCT – how’s it going for you!

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So Cycle 8 of the twice weekly intensive Chemotherapy is now complete for hubster.   So glad this is his last cycle hes so fed up and needs a break.  Problem is that on the 3rd of July he starts the prep and consent for the Stem Cell Transplant doh!.

 

 

 

 

 

 

 

 

Unfortunately Paul’s still having his twice daily Clexane injections ( anti-coagulant replacing his Warfarin for the moment) which are leaving unbelievable bruises  – look at this devil.

 

 

 

 

 

3rd July 2018
So rolling forward to the 3rd of July, we met with the Hematologist at Manchester Royal , a really charming and funny chap.  The day was basically taking a measure of Pauls weight, yet more bloods, a run through of the forms, sign your life away and what happens during Stem Cell.  All very straight forward. The first part of the Stem Cell Transplant process is basically checking that you are fit enough. So you’ll have a series of tests to check before proceeding with the SCT and onto the next stage which is the harvesting stage.

https://www.nhs.uk/conditions/stem-cell-transplant/what-happens/#tests

1 – 01/07 – CT Scan

2 – 10/07 – Lung Function Test

3 – 12/07 – Bone Marrow Test

4 – ECG Test

5 – Harvesting prep – 13/07  – GCSF Injections ( note you need to keep them cool in the fridge) are to be given to hubby ( Paul) into his soft skin to encourage/stimulate the stem cells to go into his blood stream from his bone marrow).  So that’s me playing nursey again  – “Sorry Paul , Sharp scratch lol”

https://www.macmillan.org.uk/information-and-support/treating/supportive-and-other-treatments/supportive-therapies/g-csf.html

I wonder if they picked Friday the 13th deliberately?

6 – 16/07 – Bloods and consultation review

7 – 17/07 – 18/07 – Harvesting the Stem Cells at Manchester Royal

8 – Conditioning ( basically an intensive blast of chemo  – say goodbye to your hair – sorry)

9 – Stem Cell transplant and a few weeks stay in hospital.

 

Lung Function Test – July 10th 2018

This was a strange test , seems they are testing to see how strong you are by making you breath into a bag that’s attached to a machine. Paul had to blow into the blue pipe that has the bag attached to it , short and long spurts of pushing air out of your lungs. The machine then very cleverly works out your lung function capacity.

 

Its Bone Marrow test day – July 12th 2018
Well its been a funny old day today . Hubby Paul my lovely unlucky chappie is the one with the Multiple Myeloma ( Cancer) , he had his bone marrow test today in prep for his Stem Cell transplant. He’s having the cell extraction next Tuesday and Wednesday at Manchester Royal. They tried to get his bone marrow via his hip to extra the bone marrow cells but couldn’t do , it just wouldn’t go in (he must have bones as solid as granite eh?) , so the doc went in via his chest. So here’s what they do they swab the area of where they are going to extract the bone marrow.  In hubbies case his chest, then they inject a local anesthetic.  Then lastly certainly from what I saw they use what looks like a tube with a needle on the end but its a different type of needle to the usual injection ones. They remove a sample of bone marrow cells or an area of bone marrow in one piece. Here’s a link to the procedure if you want to see the graphic details https://www.cancerresearchuk.org/about-cancer/cancer-in-general/tests/bone-marrow-test.

I stayed in the room during the procedure, moral support and all that. Hubby screamed, I’ve never heard him scream before it wasn’t good. I brought him home about 10:30am from hospital and hes been in bed asleep since. Only waking for lunch and drinks. Feeling very sad, lonely and pretty useless today as theres not much I can do for him apart from food, drinks and checking on him.

Pups on guard, well looking at her maybe shes guarding the fan as its super warm who knows.

 

 

 

So thats it, next week we have the pleasure of attending hospital three days in one week and the harvesting starts.  Oh joy bring on the Harvest Festival. !!!!!!

Multiple Myeloma – Whats that Paul?

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10/06 – So I’ve just read whilst searching around that for Manchester Royal if you are having Stem Cell visiting hours seem some what restricted. Hope I’m wrong Ward 44 shows visiting as  Monday, Wednesday, Friday and Sunday 2 – 8pm ( I assume no visiting Tuesday and Saturday) and Thursday is 3 – 8pm eeeek. Not sure how we are going to cope with that one as we’re always together when we’re apart its really horrible , we feel disjointed, lonely and sad as if one of us has died its really weird. But I guess we’ll have to wait and see what the consultant says in July.  ( Quick update 11/06 – Well phew a lovely lady on the UK Myeloma Support Group on FB advised if hubby is in isolation that I can probably visit when ever I need to – thankyou x )

https://www.cmft.nhs.uk/media/844460/ward%2044%20and%20haematology%20day%20unit.pdf

Been out in the garden today as its been so gorgeous, putting in a few new plants doing the raised beds and then we had a lovely barbi.  Still makes me giggle a little when Paul just falls a sleep mid flow.  I know I shouldn’t laugh but he does fall asleep in the funniest places, bless him. Hes so tired these days and sleeps at ever opportunity but I guess thats the intensive chemo and all the pills hes having to take (You can hear him from a mile off I call him shake , rattle and roll lol), I hope having the SCT changes that for him and he can do more of what he wants to do.

We’re now safely inside, managed to get everything in and the table/chairs and barbi covered up literally seconds before the heavens opened.  Goodness did it rain, but the gardens a lot happier. Made Paul a cuppa and hes currently  downstairs watching F1 he loves motor racing.  I got totally soaked oh well, one totally wet babe lol.

Check out my garden pics here I grow my own veg/fruit/herbs, first started in 2016 when Paul first got bowel cancer with the aim to making him healthier by growing my own vegetables. I think the fresh stuff helps keep him as healthy as possible , well I think it does :0) .

https://www.pinterest.co.uk/janiesingermode/my-home-allotment/

At least there’s no hospital tomorrow, as its a week three so no chemo.  I love the staff at Oldham Hospital Ward F11 Day Unit but blimey its super boring just sat there waiting.  Paul’s always last , I don’t know why and he gets so fed up and bored. Still got tablets and his 2nd injection today of Clexane to do ,but overall its not been that bad a day really.  Paul’s feeling okay just tired and a bit head achy.  I have the day off work tomorrow so going to go out for the day depending on how Pauls feeling.

But the good news is , is that I have a surprise for him that I hope hes going to love :0) , I might tell him tomorrow, mmm might do that as he needs cheering up.

To be continued…………….